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I am so buying this for my future child.

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Hell, I might just buy it for myself right now.

Check it out here!

Description from Amazon.com: This book begins, “Ms. Rubinstein is a beautiful woman. But nobody knows it,” and the elegantly dressed woman is shown with her back to readers. On the opposite page, she is depicted in close-up, with a fan covering the lower half of her face: “Ms. Rubinstein has very beautiful eyes. But nobody sees them.” As the story progresses, readers are shown more of Ms. Rubinstein’s lovely attributes, until finally the fan is removed to reveal that she is the Bearded Lady of a visiting circus. On her day off, she goes to the park. No one seems to notice her kindness in feeding the birds, except for the pigeons and Mr. Pavlov, who sits next to her. In this scene, the lower part of his face is obscured by a scarf, while Ms. Rubinstein’s face is completely unadorned. The two steal admiring glances at one another, then gaze directly into one another’s eyes, and walk away hand in hand. Onlookers do not see the pair’s smiles or growing love. They can only gawk at Ms. Rubinstein’s beard, and Mr. Pavlov’s trunk-he is the Elephant Man of another circus visiting the town. The stylized illustrations in bold and muted hues of red, black, and beige complement the text. Beauty is in the eye of the beholder, and readers will find much beauty in these characters, and in their story.—DeAnn Okamura, San Mateo County Library, CA

Absolutely wonderful.

Dear Facial Hair

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Dear Facial Hair,

I am writing to apologize.

I am sorry for hating you.

Sorry for trying so. very. hard. to get rid of you, instead of making friends with you,

trying to understand you,

and listening to the lessons you were teaching me along the way.

You have been with me for over half of my life.

I have been in a relationship with you, fighting you, struggling with you, crying over you, laughing at you, trying to explain you

for what seems like ever.

I cannot yet say, with full certainty, that I love you.

But I can say that I respect you.

I respect you, because I respect myself. You are a part of me. You are a huge part of what makes me

me.

I would not be the same without you. You have given me insight, compassion, understanding, tolerance, strength.

You have made me think about myself and my life in a way I probably would not have otherwise.

You have made my life harder,

and so you have made me stronger.

One of the incredible, brave women I have interviewed so far reminded me of something my grandmother used to say to me, and that her mother says to her:

G-d doesn’t give you anything you can’t handle.

You teach me that every day.

So,

thank you.

For all that you have given me and taught me, and for all that you will give me and teach me in the future.

Love,
Carly

Cookie Apology, Update, and an Idea

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I’m so sorry I’ve been M.I.A. I’ve missed you. Please accept these incredibly incredible cookies as part of my apology. Ok, I know I can’t make them for you personally, but know that I would if I could. Also? I hope you make them for yourself and loved ones, because they really are that good. You just need some patience to let the dough rest. And even if you don’t have the patience, I’m sure they would still be pretty great.

Ok, so none of that had to do with hair or PCOS or hormones or anything. But I hope the deliciousness will make up for that.

I just wanted you to know that I’m alive and well, and give you a quick update since my last post. I got my period the day after I wrote that. It was a more normal period than the first one after stopping the pill, and it gave me hope that things might be regulating a bit. I think I jumped the gun getting my hopes up after the first period, and I’m trying to be a little more realistic this time around. I’m not expecting that things will be completely regular right away, if ever. I just expect that there will be some semblance of normalcy, whatever that means. At least, normalcy for me.

My mood has steadily improved over the past month. I’m so thankful for that. Another sign that things are stabilizing.

Switching gears, I have gotten some emails from women around the world who are interested in helping out with the project. Here’s what I’m thinking…

Women who do not live in the U.S./Canada: Would you be interested in filming yourself where you are and posting it to this site? I’m thinking they would be around 10 minutes, and I can send you possible questions or topics to consider discussing on camera. You would need to have a webcam or another way to film yourself, and a way to upload your video. If you can post your video to, for example, vimeo.com, I can easily post it to the site. Youtube would work as well.

If you are interested, please email me at carly.pinkrazor@gmail.com or comment!

And you know, now that I’m thinking about it, this might work well for women in the U.S. and Canada, even if you are participating in the documentary. These videos will be shorter, and won’t be able to be as in-depth as the film because of that.

Just thoughts. Let me know what you think.

Getting Off the Pill

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Some of you may remember that, back in November, I visited a naturopath to talk about my PCOS diagnosis and concerns about getting off of birth control pills. It was a wonderful experience, but is unfortunately very expensive to do, so I haven’t seen her since. I’ll go back when the funds are there, hopefully soon. In the meantime, I’m also doctor-shopping.

And not taking birth control pills anymore.

So, it turns out that after 14 years of my body used to something, being abruptly off of it hasn’t exactly been pleasant. One worrisome thing is that I haven’t had my period since we talked about it the last time, but I expected that might be the case.

In addition, my facial hair has gotten thicker, and seems to have spread a little? I’m also breaking out more often, and my skin is, for the first time ever, oily.

But the biggest issue has been my MOOD. Oh boy.

I talked to a friend of mine about it. I told him that I’ve been feeling down, but that over the last week, things have been better. Like I’m climbing out of a hole, bit by bit. He asked how long it had been going on, and I said, “I think since November?” He asked what happened in November. The only thing I could think of was that there was some work drama then, but that it’s pretty much resolved.

Later, when I thought about it, I realized that in November, I took myself off of birth control pills.

Now, at baseline, I’m a pretty anxious person. I worry about everything. But this has been different.

For the last few months, since I stopped taking the pills, I’ve felt increasingly depressed. Like, make-myself-get-out-of-bed-to-go-through-the-motions-of-life kind of depressed. I’ve been thinking about what it means that I’m alive, if I’m doing the right thing with my life, the end of the world, doing some random sobbing, and all sorts of other stuff. Then, for the last week, I’ve been feeling ok. Good, even. Maybe my body is getting used to life without birth control? I don’t know, but I’ll take it.

I found an article about getting off the pill, and she discusses mood, among other things. Bonus: It’s funny! Check it out here. Also this article was one of the better ones I found for a concise explanation of what might happen when you stop taking the pill.

Do you know of any other resources for people who are thinking about stopping? Of course, you should talk to your health professional about it, but it’s always good to have resources. I’m also curious to know about your experiences either starting or stopping medications when you weren’t quite prepared for the side effects. Please share!

Hope your weekend is swell so far, and as always, thanks for reading.

Interviews, Thoughts, and Love

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Over the weekend, I started preliminary interviews for the documentary.

I won’t go into too much detail about the content – keep a sense of mystery! – but I will say that it was GREAT! To those who have participated so far: I really enjoyed having the chance to talk to you, and I feel so honored that you shared some of your story with me. You rock.

I felt exhilarated after the interviews. It’s getting more and more real.

The conversations brought something to the forefront for me that is always somewhere in the back of my mind: What if I grew my beard? What if I chose not to remove?

One interviewee discussed deciding to grow her beard after deciding that, before she could remove with integrity, she needed to feel what it was like to grow it. She talked about the beard being a part of her body, and in her journey toward self-acceptance and body acceptance, it was important for her to know her body in its natural form, beard and all.

That got me thinking. A lot.

I identify myself as a heterosexual, cisgender female. The larger culture, and the community that I consider myself to be a part of, is heteronormative. With that comes tremendous privilege in ways that I know I don’t fully understand, because I’m a part of it.

A trend that I’ve noticed through talking to you lovelies over time (and certainly this is not true for everyone – just a general trend I’ve picked up on in my limited experience) is that those who consider themselves part of the hetero community (such as myself) tend to remove. Those who consider themselves part of the LGBTQ community tend to feel more comfortable NOT removing. Or, maybe a better way to put it is that I have not talked to any hetero females who grow and consistently wear their beards, but I have talked to LGBTQ females who do. There seems to be more tolerance for bearded females and more freedom to explore what the beard means and looks like. I understand that my identity comes with privilege in a lot of ways that don’t just include the beard. I also wish there was more freedom within my identity to explore difference. I mean that in both an internal way and an external way.

So. Do I not let the hair grow because I’m afraid to lose that privilege? What would it mean for me to grow it? Because, unfortunately for now, it would mean so much more than just, “Ok, now I have a beard. Moving on.”

Out of genuine curiosity, I asked Craig what he would think if I decided to grow it. We had been talking about the interviews and the above thoughts I was having. Below is approximately how the conversation unfolded:

I said, “I’m wondering… and this is out of curiosity, not like a loaded question… What would you think about it if I decided to grow out the beard?”

He thought about it for a minute, then said, “I really don’t think I would care.”

“Really?! I’m sort of shocked by that. It’s surprising.”

“Yeah, I mean… It’s not like one day you wouldn’t have it and then the next day you would. It would be a process while it grew in, so I would get used to it while you got used to it.

“And,” he said, “I love you.”

At which point, he got tears in his eyes, and I got tears in my eyes.

I said, “Why are you crying?”

“Well, I don’t know. I didn’t mean to make you cry.”

“It’s out of happiness!”

“Yeah. I just want you to know that I love you for YOU, and it doesn’t matter to me. Whatever you need to do is fine.”

My very good friend told me her definition of respect yesterday: “Letting something be what it is.” I feel so respected and fortunate and loved. I want that for all of the beardos out there.

To sign off, a reminder to let me know if you want to participate in the doc, and/or if you know someone who might be interested. And thanks for being here!

A Strongly Worded Letter

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It’s been a little while since my last post. Lots on my mind, including this letter I drafted and will be sending to the clinic I’ve been going to.

Have you ever written a letter like this for something medical or otherwise? I never have. The closest I’ve ever come was a really bad review for a professor I once had. Luckily, most of the professionals in my life are pretty competent. But I felt like this issue deserved more attention.

Hope you’re having a good week!

To Whom it May Concern:

My name is Carly, and I was diagnosed with Polycystic Ovarian Syndrome at the age of 13. For context, it is important that you know that I am now 27 years old, which means I have had the diagnosis for 14 years.

In 1998, when I was diagnosed, it seemed like relatively little was known about PCOS. I was told that I should take birth control pills to regulate my period, and that that would help with many of the symptoms I was experiencing. When I started taking the pills, the only difference in symptoms that I noticed were the side effects of the medication. I was vomiting frequently and felt tired most of the time. I do not blame my doctor for this, because she was treating me the only way she knew how at the time, and since then, I have been put on several different types of birth control with lower doses of hormones. The lower amount of hormones helped to control the side effects I experienced.

Since I was 13, I have had several different doctors due to moves. Most recently, I have been attending yearly gynecology appointments at your clinic.

The doctors and nurse practitioner I have seen have, in my opinion, been less than impressive. In the past few years, I have consistently asked questions about discontinuing birth control pills, including what might happen when I start trying to have children, what kinds of side effects I should expect after being on them for so long, and alternative medications or treatments. The overwhelming response I have gotten over the years has been “I don’t know.” I understand and appreciate that each patient is unique, and that it is often difficult to estimate how a person will respond to any given treatment or discontinuation of treatment. However, I received little to no support in my desire to discontinue birth control, and was told the following: that my chances of cancer will skyrocket, that I should just continue because I have been on them for so long, and that my symptoms have remained mild specifically due to the pills.

Perhaps these statements are correct. I don’t know. I’m not a doctor. But I am a very concerned, proactive patient who has done some reading on my own regarding PCOS, and I have found other doctors and clinics who seem to have more answers and different answers. There is a lot more information available now than there was in 1998, and there are other medications and treatment options out there that do not necessarily include birth control pills.

I am angry because none of these treatment options were ever explored with me at your clinic. I am angry because only one of my symptoms, an irregular period, was treated, rather than any underlying causes and/or looking at all of my symptoms as a whole. I am angry because no one seemed to know the answers to my questions. And, I am angry because the idea that it is possible for my symptoms and condition to be reversed was never explored. Year after year, I was told to keep things as they had been. To keep taking the pills. To keep doing what I was doing. The problem was that nothing had gotten any better… they just hadn’t gotten any worse.

14 years is a long time to be doing the exact same thing with no change.

The final straw came during my last annual appointment. I am in a committed relationship, and we have been seriously discussing having children within the next few years. He and I sat down together and came up with a list of questions related to fertility. I know that it will take some extra effort for me to have children, if I am able to have them at all, due to the PCOS. It is an emotional topic for me, and a lot of time and thought was put into the questions we had. The nurse practitioner I saw had no answers for me. She was on the computer, looking up answers on the Google-powered search engine I am assuming is standard at the clinic, while I watched. I left the office with a very general, basic information sheet about PCOS (all of which I already knew), no answers related to fertility or getting off of the birth control pills, and a very pissed-off feeling.

I will not be returning to [clinic] for medical services if I can help it. I am currently looking for a different doctor. My hope in writing this letter is that there may be some PCOS training available for the practitioners who do gynecological exams. It is disappointing that I was not referred to a practitioner with more experience with and knowledge about PCOS who could also conduct my yearly exams, and that my doctor did not seem interested in obtaining the answers that I need. I understand that doctors and other practitioners are very busy. I get that there is so much to keep track of and keep up with. But at this point in my life and in my medical care, I refuse to continue to not have my needs met.

Thank you for your time.

Sincerely,
Carly Gershone

Preliminary Interviews

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Hi everyone!

I’m starting preliminary interviews very soon! If you are interested in being interviewed or know someone who might be interested, please let me know and/or let the other person know to contact me.

Unfortunately, I won’t be able to do any serious international traveling. I know. Lame. So, I’ll only be able to interview you if you live in the U.S. (and perhaps Canada, but we’ll have to discuss it).

You can reach me about this at carly.pinkrazor@gmail.com. I’ll send you an email with some interview time options, and we can go from there! The preliminary interview is a phone interview. It will take about two hours, and I’ll record the conversation.

I’m so excited to get to talk to you!

We Now Interrupt These Thoughts…

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A while ago, I talked about doing something related to self acceptance every so often here in this area of the internet.

I kind of think this whole site is related to self acceptance, no?

Anyway, I’ve been giving this subject a lot of thought, and I want to share some tips with you guys that I’ve learned over time, both in my professional training/experience and personally.

Step One: Become aware of the thoughts you’re having that are getting in the way of accepting and loving yourself.
When you’re feeling like crap, there are usually thoughts behind that crappy feeling. When I feel bad about myself, I can pinpoint the thoughts I’m having, like, “Wow, you look like crap today,” etc. Think about it: If there was someone in your life who told you negative things about yourself all the time, you’d feel bad. It’s the same when you say negative things to yourself. The difference is that many of us have trained ourselves to talk shit about ourselves over time. It becomes a habit. Because it’s such a habit, most of us aren’t even aware that we’re doing it.

Get aware. Start to notice those thoughts. No need to judge them, just noticing them is great. Better yet, start to write down some of the thoughts you’re having. Keep a little notepad with you throughout the day to keep track of your thoughts/feelings. It might look something like this:

1/4/12, 9:44pm
Feeling: anxious
Thought: “People will think this post is stupid.”

Ok, I don’t actually think that, just using it as a for-instance :-) But see how my thought of “People will think this post is stupid” leads to anxiety?

When you start to become aware of the thoughts in a non-judgmental way, the next part of the process can begin.

Step Two: Challenge those thoughts you noticed in step one.
The truth is, I don’t know if people will think this post is dumb. It turns out that I can’t tell the future (as awesome as that would be). Once I notice that I’m having a thought that is getting in the way and causing me stress, I can examine it, decide if it’s true or not, and challenge it. If I really assumed that people would read this and decide it was stupid, I would never post anything and this blog would cease to exist.

In the case of female facial hair, for example, I used to think that no one would accept me as I am. I thought I would never be able to tell people about my hair or reveal it to anyone.

But again, I can’t see the future, and I can’t read peoples’ minds. And I was wrong.

Often, it’s hard to challenge the thoughts. To begin, I suggest considering the possibility that the thought might not be true. You don’t have to believe that it’s not true, but just consider the possibility. Over time, it will become easier to challenge. I promise. It just takes practice.

Step Three: Replace those thoughts with positive thoughts.
When you create a habit, what you’re doing is creating “grooves” in your brain. The thought patterns we have strengthen over time, which is why habits can be so difficult to break. So, we have to practice new patterns in order to create new habits.

When you catch yourself saying negative things about yourself, and then you consider the possibility that the thought might not be true, after a while you might start to believe that it’s not true. Did that make sense? I hope so.

Once that happens, you will be at a point where you can start having new thoughts that will serve you better than the old ones. The whole process, using the above example, looks something like this (and this is me talking to myself):
“People will think this post is stupid.”
“Wait, that might not be true.”
“In fact, it’s probably not true at all. I don’t know what other people will think. I’m not a mind-reader or a psychic.”
“You know what? People will probably think this post is awesome!”

To put it simply, you can often replace the old thought with the opposite thought. So, “You look like crap today,” turns into, “You look AMAZING today!”

At first, you might feel like you’re lying to yourself. It might feel weird. But it will feel weird because you’re not used to the positive thought yet, and it will take practice to get used to it. Remember that you’re forming a new habit by doing this. It doesn’t happen overnight, and it’s not always comfortable.

When I say unhelpful, negative things to myself, I sometimes think, “Would you talk to your best friend this way?” And the answer is ABSOLUTELY NOT. So why talk to yourself in an unloving, unhelpful way? We’re so hard on ourselves. Be your own best friend. It feels way better than being super mean to yourself.

And have a good night.

Thinking About the New Year

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Well hello!

I just finished reading this article, and it resonated with me. I especially like this: The most important questions seem to be ”Am I about to take an action based on faith?” and “Am I about to take an action based on love?” If I am, the action seems to contribute to “fun goodness.” If not, the action seems to create problems. It really matters why I am doing what I am doing in terms of how the results affect my life.

Do you do New Year’s resolutions? If so, what are some of yours this year, if you’re comfortable sharing?

Some of mine include:
doing more yoga
eating more vegetables
spending more quality quiet time (i.e. not watching tv during that time)

I would also like to learn to sew, both by hand and using a machine. I think that would be swell. And useful.

On a (slightly more) personal note, I’ve been so freaked out by the idea of fundraising for the Project. I think it’s getting better than it has been, but it’s still there. It’s scary to do something on a scale that I’ve never done before. Does that make sense? I was thinking about the above question: “Am I about to take an action based on faith?”, and I think that sums up how I feel about doing this. Doing this is certainly an action based on faith. Hopefully that means that some “fun goodness” will come. I think it will :-)

I hope you all have a fantastic New Year’s eve. It’s supposed to be above 40 degrees here, which is crazy.

Happy early New Year!

Happy Holidays!

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Hi All!

I hope your yesterday was great, whether it was the 6th night of Hanukkah, a Christmas celebration, preparation for Kwanzaa, or just a regular Sunday (or another celebration that I may have missed mentioning…)!

Happy holidays!

I spent the past few days in Oklahoma, where my boyfriend is from and where his family still lives. It’s nice that we come from different cultural/religious backgrounds; there’s no concern about which family to spend holidays with. We stayed with a friend, and he has neither cable TV nor internet access at his apartment. At first, I thought I would go absolutely crazy, but it was actually really nice to have the peace. I tend to forget (or not keep track of) just how much time I spend looking at screens! We had a lot going on anyway, so there wasn’t much time to be online or watching anything. What did YOU do?

I hope to have some news about the documentary for you soon. Things are going slowly as usual, but still moving!

Have a great night :-)

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